diary of my increasingly boring (and painful) life

I have EDSIII so I am in pain all the time and dislocate my joints easily.I'm hoping this blog will help me find a pattern as to what makes my pain flare up so I can avoid those things and so avoid some pain.Do I think it'll work and I'll actually be able to reduce the pain? no but its worth a try!

the beautiful poppy dog



I got a webcam, another great ebay buy so now I can show off my beautiful dogs, well I think they're beautiful anyway :) This is Poppy she's a 2 year old bedlington x whippet at the moment she's asleep in my bed. I haven't got pics of the other 2 yet because Scamp has so far been too lazy to come near the camera, you can see her in the background of Poppys pic on the left. Getting a pic of Tiger shouldn't be a problem but she got into bed before I got the chance and I don't want to disturb her now, she doesn't like being woken at 2.30am. Yep I'm up at a stupid time again, I got left shoulder and 2 ribs dislocated at the moment and my wrist doesn't feel right, it's not dislocated might be subluxed so looks like another long night for me

Why not being able to cycle anymore isn't such a bad thing

So I’ve been thinking about cycling the past few days. Just wishing I could get out there again. I can’t though because I dislocated my hip last time I tried to get on the bike and my joints have got much worse since then but I need to remind myself why cycling would be such a bad thing.

So this is going back a couple of years. I woke at 5am the usual time for a morning cycle in summer. I were still recovering from an injury so I decided to take the singletrack over the moors which is slightly uphill and brings me out to the top of rosedale chimney bank. By the time I were at the top of rosedale chimney bank I were awake enough to look at the sign that says ‘ cyclists please dismount’ check the front brake was working and set off down the hill rather slowly for once. You see usually I would ride down fast as I could slowing just enough to get round the corners but my bike was a little bit broken so I were using my dads bike and the front brake cable had snapped so I’d just removed it but hadn’t got round to getting a new one. I made it down the hill ok just had to go slower which for me was always an incredibly hard thing to do when going downhill but I managed it. There was no way I were going to cycle back up the hill, it was hard enough when I were in good shape but when I were still recovering from an injury well it would’ve been incredibly dumb even for me so I took a different route. It was a quiet road and still early so even quieter than usual so I weren’t at all concerned about getting a bit of speed up on this road. I were doing fine until a car came round a corner on the wrong side of the road! The driver was on her phone not paying much attention to the road. I had to make a quick decision: a) slow down as much as I could before she hit me or b) slam the back brake on as hard as I could and hope that when the wheel locked up and the back wheel slid out I would go down out of the way of the car. I figured b was probably my best chance of staying alive particularly seen as I were dumb enough to not be wearing a helmet. So I slammed the brake on, back wheel locked up and slid out, the driver noticed me (finally!) and I went down, hard. But I’d managed to avoid the car and I were still alive. Of course any cyclist knows the first thing you do when you pick yourself up is check the bikes ok. I were actually amazed the bike hadn’t been damaged more than it was, just a few scratches and the rear mech had taken a bit of a knock and there was a chunk out of one brake lever plus the back brake was now disconnected. Then I had the driver to deal with, she was panicking and wanting to phone an ambulance, surely it should’ve been her having to calm me down instead of me calming her down?! She was no use at all at helping me reconnect the brake either. If you’ve ever tried connecting the brake at the brake lever with only one hand you’ll know it’s difficult. My other hand was refusing to move it’d taken quite a hit. I finally managed to get the driver calmed down and on her way, by the state she was in I dont think she’ll ever use a phone in the car again. I got the brake sorted and cycled home rather more slowly than I’d been expectng to. I had lumps of gravel in my hand for days afterwards every morning I took plasters off looked at my hands to see where I still had gravel stuck in then put plasters on those. I had to cycle to the bike shop to drop my dads bike off there and get mine back the next day, that was a painful ride. My left hand was still refusing to move so I had to cycle one handed but my right arm was swollen from my wrist right up to my shoulder. I’d left a bit of skin on the road aswell of course the worst being from the inside of my elbow right up to my shoulder, still got the scars now. I couldnt straighten my right arm at the elbow for a couple of weeks but it didnt stop me cycling for long…just meant their was a bit of swearing! That cycle the next day was hell though, all my right arm was throbbing, even my shoulder blade hurt and I felt every little bump so a 20 mile ride wasn’t really what I needed. Remembering that experience has made me think maybe it’s not such a bad thing that I can’t cycle now

aarrgghh

Early hours of this morning my youngest dog let me know she wanted to go out. So I let her out the front door and as usual she raced to the little gate stopping just before hitting it and looked for anything to chase. She then went onto the lawn, jumped the wall over to the driveway and climbed through the big gate! She knows going out of the garden by herself is forbidden. I shouted as loud as I dared at that time but she wouldn't come back. I could hear her at the neighbours gate so decided I better go and get her, I daren't go back in the house to find some shoes because she could be at the other end of the village by then and I can't walk very far at all so would've had to woke my mum up, she would not have been amused! So out onto a cold wet path and then over wet grass trying to avoid the dark patches which was cow pat and also hoping the neighbours dogs who always wander around the village hadn't left any presents on the grass. I didn't have my knee bandaged so my knee kept subluxing, it's heavily bandaged again today. Poppy was in big trouble, she hid under my bed until I went to sleep and she's been really well behaved all day. I didn't get to bed until 5am and then only got a couple of hours but I did go to bed at 7pm tonight and got an hour. I thought it was better to get some sleep before my ribs get bad again, they always give me more trouble on a night.

better night

I managed about 2 hours sleep last night, well early hours of this morning. Then I slept from 9pm to 10pm tonight. I even managed to give Poppy a bath earlier. I t was a bit difficult one handed but she wasn't getting in my bed in the state she was in! My mum had taken her into the paddock with Jet the labrador puppy. Jets not a little puppy anymore, he's nearly a year old and is bigger than all the other labs that mum's partner has. Of course he doesn't think he's big, he still thinks he's just a little puppy. He's so funny he leaps on Poppy just like he did when he was a little puppy but now he flattens the poor dog when he does that! He just looks at her flattened underneath him as if he's saying 'what you doing down there?'  he's so funny he looks all confused about it. Poppy still likes playing with him but not for hours just for a little while. Of course with the rain we've had lately the paddock was nice and muddy so when Jet was leaping on Poppy and knocking her over she ended up absolutely covered in mud! Poor Poppy was exhausted after that, all she did for the rest of the day was sleep. She was half asleep when I got out the bath and put her in there, she soon woke up!! She escaped once and tried a few more times but I'd thought she'd do that so the bathroom door was closed. Keeping a dog in a bath whilst trying to wash it can be quite difficult one handed, glad I got it done while she was tired!
As for my joints today, ribs are just starting to give me a bit of trouble. Left shoulder has spent more time out of joint than in joint as usual. I dislocated my knee about a week ago and it's been looser than usual since then so I've had it bandaged since then but today I had 5 minutes every hour without it bandaged. It seems it's better for it for me to slowly increase the time I don't have it bandaged. I need it bandaged again before it starts subluxing. I've had my left wrist splinted all day it's been giving me hell today mostly where I have a weird dent in it. It hurts a lot more than a dislocated shoulder or knee. Hips are quite good today. I woke with a dislocated finger which is something that doesnt happen all that often but thats no big deal. My jaw has dislocated twice today and subluxed a few times aswell. It's been more of a nuisance than usual lately so I'm hoping it's not getting worse

soooo tired

Last night my ribs didn't settle down and let me sleep until 9 this morning! I'm exhausted. I managed to get one hour of sleep while my mum and her partner were out shopping but when they got home they made too much noise and woke me.
So far today I haven't had many dislocations. My left shoulder has dislocated 4 times but other than that theirs been no dislocations, although I have subluxed 2 ribs several times and my left knee has subluxed 3 or 4 times and both hips have subluxed aswell.
My youngest dog Poppy got to do her favourite job earlier. She got to be a post dog. She loves bringing the post to me. Mum just hands it to her and tells her to take it to me and I shout 'have you got some post for me post dog poppy then she comes racing up the stairs and gives it to me. She wanted to bring a parcel up to me aswell it was a book that I've got for my grandad and a cross stitch kit that I'm going to do for my mum. Poppy actually got hold of the parcel but it was too heavy so she dropped it and then looked all upset because she couldn't do her job.

ill

I were feeling dizzy earlier, just put it down to tiredness so I went to bed. I actually managed about an hours sleep before I woke barely able to breathe. The last week or two I've had three ribs giving me a lot of trouble, it's a kind of stabbing pain that seems to be worse on a night. As long as I don't breathe the rib pain isn't too bad but breathing almost as important as chocolate. After my ribs had shifted around a bit I went downstairs for a drink and pain meds and ended up sitting down on the kitchen floor, it was a matter of sit down or fall down! So it would seem the dizziness wasn't because of tiredness. My throats really tickly aswell, I really want to cough but I did that earlier and still have a rib dislocated so I'm desperately trying not to cough because breathings difficult and painful enough already. Tonights going to be another long sleepless night, if it wasn't for my ribs I don't think I'd have too much of a problem sleeping but the ribs will keep me awake for hours yet. At least my dogs are getting a restful night. Scamp the oldest is laid on the end of the bed and Tiger and Poppy are both in my bed snuggled up right next to me.
ouch
Female - 22 years old
United Kingdom
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